Monday, September 11, 2006

Not So Great

Well, her femur isn't in her hip the way it is supposed to be. The doctor couldn't get a really clear look at it, but he's 95% sure it's out of place. He very nearly decided to go ahead and fix it right there, to save having to go back, but that would have necessitated putting her in a spica cast without us having a chance to prepare for it. Plus, since this is apparently the first time he has had one of these procedures fail, he wanted to take some time to review what might have gone wrong, lest the next time we go in it fails again. So they took out the metal and sewed her up, and we'll get a CAT scan within the week to confirm it is out. We are then going to attempt to take her to an arthrogryposis clinic, either in Delaware or in Seattle, where she can be evaluated by people who do little but see kids like her all day. Her surgeon will discuss their opinions with them then, because he is hesitant to even redo the work if he can't be sure it won't come out again. Which would mean a permanently dislocated hip, which would mean an even-more-screwed up gait and possibly other complications as she grew. On the other hand, there isn't any point in going through such major surgery if it isn't going to actually fix anything.

Not what we hoped for, but she's doing all right and looks like she can come home today. Without a body cast. Whew.

7 comments:

Anonymous said...

I'm sorry. I'm so so sorry. I hope peanut gets to go home today. More ice-cream? Chocolate? I wish I had something else to say .....

Pronoia said...

I'm so sorry things didn't go as planned. Sending good wishes to both Peanut for her recovery and you for finding a solution.

Beanie Baby said...

Oh, I'm sorry.

Carlos said...

Oh darn.

Mete said...

I'm so sorry to hear that. Ethan goes in for his plate removal later this year, and I'm curious what they'll see. At the last x-rays things looked okay, but with his level of CP I'm pretty sure we're going to have to go through this whole thing again in a few years. So frustrating.

Best of luck with the next steps...

Anonymous said...

Ugh- not what you wanted to hear. Poor Peanut. I hope the catscan shows a better report. TOY and hugs all around-

Julia said...

I'm so sorry to hear this. Hang in there.